I just got a fabulous compliment from a new reader about how much she loves my blog. It was from someone who I have not yet met, someone with the Friendship Circle, a fabulous organization who is coordinating a teenage volunteer to come play with A a couple hours a week. It's always kind of disconcerting to know that someone who I may meet someday will know so much about me before we even say, "Nice to meet you!" On the other hand, it's a great conversation starter, and kind of puts me more at ease, especially if they've read about how tough it used to be for me to meet new people and make small talk. All in all, it's always nice to hear from a fan! :)
I'm so proud of myself. I finished all my plans for Hebrew School today plus my list of Hebrew School materials needed by week. I am 95% finished my Religious School plans, am totally finished detailed plans for my Shabbat Parent and Me group, and am about 60% finished my preschool plan. I'm doing great with my goal of getting all my school plans completed by September.
I'm also proud of myself for finally doing something about the constant fatigue that I have felt for so long. I met with a sleep specialist doctor today. After talking at length about my symptoms, she wants to not just do a sleep study but a TWO DAY sleep study! Yes, I will need to spend the night, hooked up to all kinds of machines while I try to sleep. If the test shows significant evidence of apnea episodes, then we'll assume that is what is causing the fatigue and treat that for a while to see if that makes a difference. If the apnea episodes are not that significant, they'll need me to stay an additional ten hours, hooked up to most of the same machines. They'll have me attempt to take a nap every so many hours, allowing me no more than 20 minutes to fall asleep. If I fall asleep, they will only let me sleep for fifteen minutes. If I don't fall asleep then I will not be able to nap again until the next time. She said the fact that I have felt fatigue for so long (I do a good job faking it, but really feel like I could fall asleep almost at any time if given about ten minutes of quiet) she had a couple other possiblities, one of them being a form of narcolepsy, which apparently is yet another spectrum disorder (and boy, do we know all about them). Some of what I read about narcolepsy doesn't seem to fit me, but the sleep paralysis happens to me most nights - I thought it was normal. I truly thought everyone sort of shifted into a half asleep/half awake mode before they actually fell asleep, alert enough to manipulate their dreams a little but not enough to move their body. I will schedule the test tomorrow. I cannot wait to find out what they discover.
1 comment:
Interesting...narcolepsy. My father suffers from it and has for years. It got so bad that he'd doze off walking across the living room floor on his way to his chair. I've read about it at great lengths, we have to have a sleep study done for Bugaboo (which I am soooo looking forward to!).Good luck! Let us know how it goes!
The friendship circle sounds AWESOME, wish we had something like that.
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