Thursday, October 26, 2006

Thursday Thirteen

Thirteen Things RACHELis Kind of Stessing About This Week

1. Look at my weight tracker. Just look at it! Did you notice it has not moved down but has actually moved UP two pounds? Yes, I had to change the starting weight! That's just ridiculous!!! Time for me to get serious about dieting. Crap.

2. A only qualifies for two half hour sessions of OT a MONTH.

3. Even his OT teacher, who we met with on Monday, thinks he needs way more than that.

4. Did you know that if you can read really well, much higher than your expected level, and you test really low for other fine motor/sensory issues, the scores are averaged together to make you average, therefore not eligible for much OT?

5. Just found out that one myself.

6. Any ideas how to get the IU to pay for more therapy when even the therapist is telling me that I should get private Sensory Integration Therapy for him at least once a week and the IU feels he only needs it once a month for half an hour?

7. Any idea how to allow A to let me do the various therapies the OT sent me home with (putting lotion on him, brushing him) when one of the therapies that she showed me (joint compression - which he calls "boom boom") apparently scared him so much he's terrified every time I touch him that I'm going to do that?

8. Any clue how I'm supposed to do all these therapies with him three to four times a day with all the other kids around?

9. One plan to get him to stop putting everything in his mouth constantly is to give him something chewy or crunchy to eat. She was really pushing for gum, but if I give him gum than I have to give it to everyone and I really don't think they're all ready for it!

10. The other suggestion was carrots, but if I give them that in the car (a prime oral time) they might choke while I'm driving.

11. The other idea was soft pretzels (chewy) but if I give them that when I pick them up from school A) they might give some to the baby who has severe food allergies and B) will they still be able to eat lunch when they get home?

12. A is really wound up when he walks in from school. He will usually sit and eat some of his lunch, but then he's up and moving and in his own world. It seems like he might benefit from some of the OT therapies at that time, but how can I do that when I'm trying to give everyone lunch?

13. AARGH!!

On the plus side, did you know that TiVo (A's newest obsession) has a password protected Kid Zone that won't allow him to do ANYTHING but watch the kid shows already recorded? That's right, he can no longer add more shows to be recorded (Why would he ask it to record the View?), delete shows from my To Do list, or add his name to the Wishlist in the hopes that there will be some show with his name in it, or add in his own password to block the rest of us out. We're safe, until he figures out what my password is.

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Racy Li said...

Oh just think, the weekend is almost here! Hang in there! Try see if you can take some time for yourself because you DEFINITELY deserve it!

My TT is up too! :)

Chaotic Mom said...

You and I TOTALLY need to bang our heads together on this one. Seriously. And you KNOW what I'm talking about.

Thanks for stopping by my T13. I'm still working on the office, groooooooan...

Shoshana said...

Get rid of the weight tracking...if it gets in the way of losing weight.

M-j said...

All I can say is that you have to keep harassing them about the OT. I hope the devel ped put it in her report. As soon as they get that piece of paper you need to send it to them and harass them. Keep calling and telling them.
As far as the OT strategies, Ian HATED it at first. He cried. It was a violation of his personal space and he hated to be touched. But he slowly became less sensitive to it. It takes time. I hate to say it, but you kinda gotta be mean.
Oh, and I give kids carrots in the car. If they choke, PULL OVER.

Slackermommy said...

I feel for you. I have kids with processing and sensory issues on top of Tourette's Syndrome and ADD. We should get medals for parenting these kids. It's not easy!

Alyssa Goodnight said...

Thanks for stopping by my T13...sounds like you have more than got your hands full! Definitely find some time for you!

Amanda said...

Sounds like you are having a tough time. This is my first visit to your blog--I will read more to understand your story.

Janean said...

My nephew has physical challenges as well and it is a constant battle to get him the help he needs. So frustrating sometimes!! OK, well, ALL the time!
Keep looking up :D

Anjali said...

Well, I haven't a clue about this whole process, but I do know how to average numbers, and well, it doesn't add up. Why do parents who fight so hard to make their kids better, fought so much? I've never understood this.